Data Sharing Resources

The pharmaceutical industry, health agencies and other organisations support the responsible sharing of patient-level data to facilitate data-driven research which will ultimately lead to improvements in patient care. PSI fully supports data transparency. On this page is listed some of the clinical data platforms.  If you wish to use data to support your research, or if you are a student or teacher who wants to work with real data, please contact the appropriate organisation, as shown below. PSI has no access to clinical data.

If you are aware of other platforms that could be added to this list, please email psi@mci-group.com.

Platforms for Data Sharing

Organisation/Site name Website Data available Application for access required?
Clinical Study Data Request (CSDR) https://www.clinicalstudydatarequest.com Clinical trial data. Yes (via website)
DRYAD https://datadryad.org Data underlying scientific publications. No
EASY https://easy.dans.knaw.nl/ui/home Research data. Yes (via website)
Edinburgh Data Share https://datashare.is.ed.ac.uk/ Research data produced at University of Edinburgh. Yes (via website)
Nature http://www.nature.com/sdata/policies/repositories Links to various data repositories are provided. N/A
Open Science Framework (OSF) https://osf.io Research data. Yes (via website)
Vivli https://vivli.org/ Global clinical research data. Yes (via website)
Yale University Open Data Access (YODA) Project http://yoda.yale.edu Clinical trial data. Yes (via website)
Dementias Platform UK https://portal.dementiasplatform.uk Dementia-specific data. Yes (via website)
Global Alzheimer’s Association Interactive Network GAAIN http://www.gaain.org/ Alzheimer’s-specific data. Yes (via website)
Immune Tolerance Network Trials https://www.itntrialshare.org Immunology clinical trial data. No
Project Data Sphere https://www.projectdatasphere.org Oncology-specific academic and phase 3 clinical trial data. Yes (via website)
European Medical Information Network http://www.emif.eu/ European health data. Yes (via website)
Health Data Finder http://www.hdf.nihr.ac.uk/ UK health data. Yes (direct contact details for custodian of dataset of interest provided on website)
Swedish National Data Service (SND) https://snd.gu.se/en Swedish research data. No

Upcoming Events

PSI VisSIG Wonderful Wednesday Webinar Series

This is a good opportunity to develop your knowledge by thinking through a practical example, practicing how to apply graphics principles, and developing your coding skills.

PSI VIS SIG Webinar: Collaborative & Exploratory Data Analysis

In this talk, you will learn how to quickly explore your data in the web browser and how to create, collaborate and share interactive visualisations with others.

PSI Pre-Clinical SIG Webinar: Assay Qualification by Linear Mixed Model: Confidence, Prediction & Tolerance Intervals

Dr Francq will discuss the need for analytical methods to deliver unbiased and precise results and talk in detail on confidence, prediction and tolerance intervals work in linear mixed models and the interpretation of statistical results. This will be followed by Q&A.

PSI Training Course: An Interactive Introduction to Agile Ways of Working

During this session you will explore how we best execute change within our roles, build your practical understanding of agile tools and techniques, and inspire you to experiment with the new ways of working to deliver your goals.

PSI EIWG Webinar: Impact of estimands

To understand how the estimand framework changed the development of clinical trials.

PSI Training Course: Hybrid Frequentist / Bayesian Power and Bayesian Power in Planning Clinical Trials

Aimed at Statisticians working on the design of Clinical Trials, participants will learn how to use Expected Power, Average Power, Predicted Power, Probability of Success and Assurance, and Bayesian Power when planning clinical trials.

Latest Jobs

Apprentice Biostatistician

The Apprentice Biostatistician splits their time between working for Parexel and performing studies with a university to obtain a MSc in Statistics over a period of three years.

Biostatistician / Statistical Programmer

We are actively looking to expand our team in Wokingham with a permanent position for a Biostatistician / Statistical Programmer.

Principal Statistician combining biomarker analysis with clinical data

We are looking for a Principal Statistician to be part of exciting work combing clinical trial data and biomarker data to support the future development of molecules within the therapeutic areas of obesity and NASH.

Statistical experts for cardio-renal outcome trials

Biostatistics GLP-1 & CV 1 is seeking statisticians at Specialist and Principal level to be part of the biostatistics team responsible for Novo Nordisk’s large cardiovascular outcomes trials.

Statistical experts for drug development

The position will be made to match the seniority of the candidate and for the right candidate we offer the opportunity to work mostly homebased from European locations.